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Autism – Different Not Less

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Pic Courtesy Micha Van Schoik
Pic Courtesy Micha Van Schoik

Top Must Know About Autism

– It is not mental retardation.

– It is a spectrum condition, which means that, while all people with autism share certain difficulties, their condition will affect them in different ways.

– It is a neurological condition (and sometimes genetic) which manifests in social, behavioural and communication difficulties.

– Affects more boys than girls because (unconfirmed) research has linked it to genetic makeup.

– At least 1 in 3 adults suffer severe mental health difficulties because of lack of support.

– Vaccination DOES NOT cause autism, neither does it aggravate the condition, if currently existing.

– People with Autism do not understand body language. If you have something to say, out with it. Body language is as understandable as ancient Greek to people on the autistic spectrum.

– People on the spectrum have difficulty relating to, understanding and recognizing other people’s feelings. This means they find it more difficult to communicate and interact with others which can lead to high levels of anxiety and confusion. No harm intended, it’s just how they are.

– People with autism may also experience over or under-sensitivity to sounds, touch, tastes, smells, light or colours.

– Some people with autism are able to live relatively independent lives but others may have accompanying learning difficulties and need a lifetime of specialist support.

DIAGNOSIS

Some of the telltale signs of autism in a child include:

  • not drawing their parents’ or others’ attention to objects or events, for example pointing at a toy or a book, or at something that is happening nearby (or a child may eventually do this, but later than expected)
  • carrying out activities in a repetitive way, for example always playing the same game in the same way, or repeatedly lining toys up in a particular order
  • resistance to change or doing things differently
  • emerging difficulties with social interaction, social communication and social imagination.
  • behaviour such as biting, pinching, kicking or self-injurious behaviour

A child must have at least 3 of these or similar signs before professional diagnosis is done.

There is a Checklist for Autism in Toddlers (starts from 18 months upwards) which can be used by parents and what this measures is basically risk for social-communication disorders. There are other professional examinations done by clinicians and psychologists too.

Children with autism can cope well in mainstream school after being certified by a therapist. In addition, they can have support sessions after school and cope best in schools with a SEN department.

For a parent whose child has been properly diagnosed and the feedback is autism, know that it is not the end of the world. Information is knowledge. Now that you know why your child is different, read up, join Facebook Support Groups (those are really great by the way), talk about it. An autistic child is not broken and doesn’t need fixing. He’s just different,

I have a few words of advice for parents:

– Every behaviour happens for a reason

It is wise not to take negative behaviour from your child at face value. there will probably be something going on behind the scenes. There are usually antecedents before a tantrum. You need to know what happened before the negative behaviour, who was involved, what activities were ongoing.

Thing is, people on the spectrum loathe abrupt changes to routine and they flip if they are not given adequate notice beforehand,

– Know your child’s limits.

Play dates are fine and dandy but for a child with autism, it can cause distress. Activities which embrace your child’s strengths are more meaningful, e.g. creating spreadsheets for household chores, writing a story, etc. Remember, children with autism have challenges interacting in social settings.

– Be Calm and Be in Your Child’s World

If you need to discipline your child, do so calmly and compassionately. Don’t attempt to impose discipline when they are emotionally unable to interact. An instance is when they are angry or anxious. That’s like filling a basket with water. He is not present at that period and discipline won’t amount to anything then.

Offer ways to solve their behaviour challenges, e.g. use role play to show a more positive way of handling a situation.
Use social stories or visual aids to demonstrate ‘good behaviour’ . Parent, get creative. Is there a favorite cartoon character? Use that and form a story that emulates good behaviour.
Be a positive role model for your child.

Show them the correct way to respond to criticism. And trust me, you will get a lot of criticism from other parents when your child demonstrates social tantrums. Do not be apologetic for who your child is.
– Give Positive, Clear Instruction.

Don’t leave room for confusion. Let your instructions be positive and crystal clear. Do not give more than 2 tasks at once. e.g. Bring broom from the kitchen NOT Bring broom and a cup of water from the kitchen.

OR

Look at the mess you’ve made on the table.” Instead say: “ Please clear the table and put any rubbish in the bin.”

– Give Warning

Getting from home to school or to a relative or friends house can be  a stressful experience as it can take a little longer for children with autism to process this transition.
Giving them a two minute or five minute warning can really help. Use a visual aid , such as a clock face, to count down to the time of the next transition – this will help them handle the change on their own.

This is a powerful video by a poet who is on the autistic spectrum herself. She’s brilliant, and I do say so 🙂

Another is this video by Skinny Boy, get to know Autism better

There are many therapy models available for people with autism. My favorite is ABA; I however do not want to start on that so I don’t confuse y’all.

Who needs normal anyway?

Resources: http://www.autism.org.uk

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It’s A Beautiful World

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Hi People!

Welcome to my blog.

I am Bukonla, a SEN Generalist with an inclination towards Behavioural, Emotional, Social and Learning Difficulties. My support is mainly with children aged 0-6yrs as this is the critical intervention window.

The essence of this blog is

– to give support to parents of children who have special educational needs

-be a source of information and guidance in accepting/coping with your child’s peculiar needs

– let you know that a diagnosis is not the end of the world 🙂

The blog will be divided into broad sections for ease of navigation; you are however welcome to connect with me in case you have further questions/suggestions or you just need an unbiased ear to talk to 🙂

Content of the blog will be built up three times a week and hopefully, we set the ball on a smooth roll from there.

Nice to have you here.

Cheers,

Bukonla